Tuesday, April 26, 2011

Good News

Just as an FYI for everyone, yes I'm feeling up to visitors, I just ask you send me a text to give me a warning when you're coming over.  PLEASE PLEASE keep in mind that if YOU or anyone in your household is currently sick, DO NOT come visit me.  I can not afford to be exposed to anything at this point.  Don't worry phone calls are always welcome in this instance!!

I had a really nice HLC visit today.  I can't believe it took us an hour and a half to shampoo and dry my hair, take a "shower", empty the drainage tubes, change the dressing, and get me dressed in a fresh bra and pj's!  But it felt much better when we were done!  Tina came by first, and then was joined by Joanna who brought us some salad fixings for lunch.  Just as we were finishing up, Kira brought Paige over for a visit.  I know she's been dying to see if I'm okay, she of course was very shy at first, but I bribed her with my cell phone to play with and she warmed up enough to even give me a hug before she left!  Julien dropped by for a brief visit and even brought me a sugary treat.  But it's from Whole Foods so it's good for you right?!?!

After everyone left I received a call from my doctor concerning the final pathology report.  Just like they initially thought, the lymph nodes were in fact clear.  Then he said they look at clear margins, his ability to cut through the tissue without cutting through and leaving tumor behind.  He said his margins were clear, HOOORAY!  He's definitely not a good poker player, I knew as the conversation was getting started there was bad news in the call coming somewhere.  And sure enough, he said that they found 2 very small cancer tumors growing in the right breast (the one we originally believed to be clear).  They were about 6MM and 3MM.  This is not good news as far as cancer growing in my body, but makes this pain and recovery SOO much more worth it to know that we've removed ALL of that cancer from my body.  He still wants me to speak with a medical oncologist, which he will arrange for me in the next couple of weeks to discuss treatment options from this point forward.  Maybe it's just the release of the stress but after that phone call was the first time I've cried since before undergoing the surgery.

I do believe the worst of this journey just HAS to be behind us at this point, that things can only get better from here.  I continue to amaze myself each day with how well I'm handling recovery, and I feel just a bit stronger every day.  I couldn't have done it without ALL of the support that I've been shown!!  Thanks just doesn't seem enough to express that to everyone!

Sunday, April 24, 2011

Road to Recovery

Okay bear with me as I'm going to try and update my blog.  Typing has been difficult on the computer so I've been trying to update Facebook as much as possible as it is very easy for me to do with the IPhone.

Post op on Thursday proved to be very difficult.  I wasn't totally nauseous as I just didn't feel good.  I asked the nurses for saltines and was told I wasn't allowed to have anything outside a liquid diet.  So we started with a can of "sprite" and I managed to get half a cup of Jello down by evening time.  Well shortly after Dad and Rita left to go find dinner and head back to the hotel I was sick to my stomach.  Later after Meghan left we thought it might be a good idea for me to sit up in bed and dangle my feet over the edge as my Breast Nurse had advised, that was EXTREMELY difficult and very painful.  Brian and I just weren't sure how to maneuver my body around to accomplish this task, and as strong as I thought my ab muscles are, it's near impossible to sit your entire upper body up from a 45 degree angle using NO upper body what so ever.  Well we somehow figured it out, and unfortunately that was enough to make me sick again.

My only complaint about the hospital care was that I wasn't on "ordered" pain meds, the nurses were relying on me to ask for them to be administered when I needed them.  So unfortunately with everything else going on I completely forgot to request meds.  By about 2 am after having gotten VERY little to no sleep all night my pain level was probably about an 8-9.  The room was hot and I kept sweating, the window was open some, but we were on the 9th floor so we heard the helicopter coming in throughout the night, and with the air circulators on my legs the machine kept going on and off and it just WAS NOT a fun time.  So I asked for pain medication hoping that would at least help me sleep.  THANKFULLY my night nurse was very keen on the idea of me eating crackers before taking the pain meds, we tried an oral first with no luck so she ended up giving me some morphine, and then was able to get me a second dose of morphine a few hours later which was what I needed to get the pain back under control.

Around 6 am they came back in to check vitals and check on me.  It was decided at that point to go ahead and start the oral pain medications to make sure I would be able to tolerate them at home.  She took the catheter out, which was both a blessing and a cause of anxiety as now I'd have to get out of bed everytime I had to go to the bathroom.  I decided at that point to just go ahead and bit the bullet and try getting out of bed at that point.  We sat the bed upright as much as I could tolerate, I spent a bit of time shimmying and scooting my butt and my legs to the edge of the bed.  Then it took both the nurse and Brian lifting my back to get me sitting upright.  After sitting on the edge of the bed for a bit we tried to venture to the bathroom.  I made it to just around the foot of the bed where I became VERY dizzy and just about passed out.  We settled me into a visitors chair where I proceeded to sit for about 2 hours.  During that time my Breast Health nurse came up to check on me, she was happy to see I was out of bed, but she commented later that I looked pretty rough.  The bladder finally got the better of me and pushed me to get out of the chair and venture to the bathroom.  I ended up settling back into the recliner in the room and there I hung out the rest of the day until getting released to go home.  They changed my dressings, which now consists of a 4x4 gauze pad covering each drainage tube site.  After Rita & Dad came to check up on me I ended up taking a short walk up and down the hallway of the hospital.

At this point I was just plain TIRED of the hospital, I could see Brian was getting very restless and stir crazy.  I paged my nurse around 2 o'clock and told her I was ready to go home.  I was nervous about leaving the safety of the hospital, but I figured we were doing fine managing the pain medication and I was eating solid foods that were staying down, so there was no reason we couldn't manage that at home. Brian felt comfortable (relatively speaking) with the dressing change and the drainage tube care so I decided home was a better place to be.  We got home about 4 and I had Margaret come stay with me so Brian could run to CVS and fill the prescriptions.  Another mistake on my part, I should have had them give me another dosage of meds before leaving the hospital, because by the time I got home I was overdue and feeling it.  Margaret and I had a nice little visit and then once the pain meds were on board I was down for the count for most of the night.  I slept off and on with Brian waking me up to get food and medications in me (I'm also on an oral antibiotic while the drainage tubes are in, and I have an anti-nausea which I haven't needed).  Around 1am he successfully took care of the drainage tubes for me.

I wanted desperately to take a shower yesterday, I'm still painted orange from the iodine, and my hair is used to being washed once a day, plus I just smelled like hospital still.   I was VERY nervous about taking everything off, seeing myself for the first time, and worried that the shower would actually be uncomfortable.  I know they said it was safe, I also don't want to do something wrong that will cause an infection or a hiccup in my recovery.  So I think mind over matter got the better of me, and as soon as we had everything situated to get ready to get in the shower I got very light headed and had to sit down.  I sat in the bathroom for a bit, but realized that I wasn't going to be able to do it, so we moved back to the recliner where Brian did the best he could with washclothes.  I felt cleaner and refreshed, but I'm still covered in iodine and still feeling greasy from lack of bathing.  He changed my dressing, my support bra and my pj's and it made a world of difference.  Had a very nice visit with my Aunt Karen and cousin January, they brought me some cute blouses and cardigans I should be able to wear once I'm actually putting real clothes on!!!  Spent the afternoon up and visiting them so by the time they left the wonderful dinner Margaret and Mac brought over was ready, and so we had some dinner and I settled in for a 2 hour nap!!

I know the nights haven't been great for Brian, as he's waking me up every 2-4 hours depending on which medication I'm due for, but I am actually sleeping soundly through most of the night.  In fact I've usually fallen back to sleep in the time between his alarm going off and him getting my medications ready to take.  I even managed to sleep in until about 9 am.  I took a short nap around lunch then decided to go head and get up and move around some.  I take little "walks" around the apartment.  I go in and visit each room and just kinda wander around for awhile.  There were boxes that needed to go out to the dumpster since he had ordered some new bedding and pillows for me that came in the mail while we were at the hospital, so I suggested I walk out to the dumpster with him.  I felt pretty good so we actually took one loop around the buildings that circle the pond.  I have liked the company, and the walks, and look forward to more, but as expected it just makes me tired.  I'm not over doing it but I'm doing everything that I can at this point to continue to get my strength back and try and get as back to normal as I can sooner rather than later.  I honestly don't lay around feeling sorry for myself anyways, so this isn't going to change anything.  I'm going to continue to fight through this as hard as my body will possibly let me fight.

Meghan is due for a visit soon so I should wrap this up, I accidentally locked her out of the apartment on Thursday night by giving her the wrong key, so she decided to just come back and visit me today on her way back home to Dayton after being with her family for Easter instead.  I'm glad because I'm much more coherent and can be a little more active in the visit.  Plus as much as I know Brian will do anything I ask him to help me do, I figure it would be better to get a girl to wash my hair, dry and style it for me, and shave my legs,  then to ask Brian to do it.  Besides I'm sure he'll need to do it at some point this week anyways.  Looking forward to my mini shower more than you could possibly know!

Thanks again to everyone who has been sending cards, flowers and just general well wishes.  If it weren't for everyone that is supporting me right now, this would not be as easy of a challenge as it has been.  I can't possibly thank everyone enough for the support!

Friday, April 22, 2011

Home

She was in pain and sick to her stomach last night, this made for a very long night. She was feeling better by dawn and had an appetite. Got her back home, she slept for a couple hours and is now working on a bowl of dry Cheerios.

Thursday, April 21, 2011

Surgery Day...

I figured all of you would be checking back throughout the day looking for an update, so the best thing to do was to make one post with a time-line as things happen.  So here is goes...

10:28am - Anesthesia nurse just came in to tell us it's time, so everything is running on time.  We all met her surgeon, anesthesiologist, & nurse while we were waiting.  We did not meet the plastic surgeon because he will arrive later.  They stated surgery would take about 4 hours approximately, she will spend 2 hours in recovery, and then they will move her up to her room afterward.  But we will get updates throughout, and and update after each doctor finishes...

12:36pm - First part of the surgery is complete.  Just had a follow up consult with the breast surgeon.  He said everything went well.  Minimal bleeding.  Heart rate was great.  Etc.  She was doing just fine through the initial procedure.  He said preliminary testing by pathology of the surrounding lymph nodes was negative.  (If it had been positive, they would have needed to take some lymph nodes out as well).  So, that was probably the best news that she could have received today.  They will still send the tissue out for more complete testing by a pathologist where they will visibly look at it all in sections.  She will still be in surgery for approximately another 1-2 hours...

2:36pm - Kendra is out of surgery!  She is still in recovery right now, and is still very sleepy.  We should get to see her soon.  We met with the plastic surgeon, who said everything went well!  She will spend one night here in the hospital for sure, and she should be able to go home as early as tomorrow afternoon if she is feeling well.  They said this morning they will try and get her up and get her moving around tonight. 

Wednesday, April 20, 2011

Surgery Eve

I had a good day...I worked out this AM with Natalie.  Ironically enough my last chance workout was on my 3rd Jazzercise Anniversary, I can't believe I've been working out with Margaret and all the girls for 3 years now!!  I went into work and tackled the craft supplies closet in the lounge, and then had lunch with my good friend Nici.  Then utilized a 60 minute massage certificate that Angela gave me, and actually FELL asleep :)  Ran some errands then managed to fit in an hour nap.  Dad and Aunt Rita made it safely into town.  Tried to eat dinner but wasn't really hungry.  My newest friend Meg is supposed to be stopping by sometime this evening to lend me some post surgery goodies she used when she was recovering from her surgery.  I'm nervous and anxious about what tomorrow will bring.  

Meghan will be with me tomorrow and updating my blog as I'm out of surgery and recovering, so most of you should be able to get updates here tomorrow afternoon/evening.  I know everyone is worried about me and I wish I could call everyone personally and let them know how I'm doing, but this is the best that I can offer!!

Sunday, April 17, 2011

The New Me!!!

For those of you dying to see, here is the Before and After shots of the haircut I got on Thursday.  I decided to go ahead and donate my long hair now, so that I had something easier to take care of post op.  I don't think I would have been okay watching my hair get thrown out if it falls out during Chemotherapy.  I have gotten so many compliments on it, and each day it gets a little easier to style!

Everything Happens For A Reason

Everything Happens For A Reason.....I wasn't always sure I believed this saying, especially when something bad like getting cancer happens.  It's hard to see how something positive could be happening because of something so horrible.  But this week I have started to see just how true that statement is.  The last piece of the puzzle has fallen into place, and now I have EVERYTHING I need to fight like hell against this horrible disease.  After receiving my diagnosis I realized how easy it is to take people or things for granted, and now I've been given a second chance at making my dreams come true in the way I want them to.

I am slowly getting things together to be prepared for surgery.  I have been assigned a Breast Health nurse who will be with me every step of the way.  I've been calling her a lot lately with questions about what to expect, how to make the last few decisions about treatment, and just what I need to have at home to prepare myself for recovery.  Brian and I found a recliner yesterday that is electric, so I won't need any more than a finger push to recline or bring the chair back to sitting.  I was worried with a recliner you need upper body strength to get yourself in and out of it.  We go on Tuesday to pick it up.  I'm making a list of groceries that I want to stock up on before going into the hospital.  Those of you that know me best know I'm very organized and very much a planner.  As long as I can keep up those habits I will be able to get myself to surgery with out much trouble.  The minute I stop having things to do I'm worried I'll become a blubbering mess!  Thankfully work is allowing me to come in at the beginning of the week even though we're on Spring Break so I can finish up those last few things before being off, and help with a major project in the building.  Having somewhere to go for the 3 days before surgery instead of sitting around the house makes me feel a lot better!

Please pray that surgery goes well, my biggest fear is that any of the medications during surgery and after will make me sick to my stomach.  I know the surgery is going to be a painful recovery but I know that I can get through it.  It will get easier with time.

Wednesday, April 13, 2011

Hallelujah!!

Okay so I got the call this morning from my plastic surgeon's office.  The surgery will take place on Thursday April 21st at Grant Hospital.  I don't know the specifics yet but a date is good enough at the moment.  I'm also happy to have the person I want more than anything to be the one to take care of me taking care of me.  I am hoping my friend Meg will be able to come into town for my surgery, and if so I'm going to have her be responsible for updating the blog and being a contact for information regarding surgery.  If you are someone who is part of a "group" of people I know, for example work or Jazzercise, I am working on getting 1 contact set up for surgery info then having that person spread the news to the group.  Obviously family and close friends will be kept up to date on surgery, hopefully by Meghan.  It is late and I am exhausted so I'm heading to bed!

Monday, April 11, 2011

Quick Update

It's late and I'm way over due for bed, but I wanted to let everyone know I got the results for my genetic testing back today, and not the most shocking news.  It came back that I DO have the gene for breast cancer.  And NO I still don't have a surgery date.  I am working on getting that rectified.  I am hoping to know more tomorrow.

Sunday, April 10, 2011

My Gift

A woman I Jazzercise with works with a group of women called the James Stitching Sisters, which is a group of women that make quilts for chemo patients.  She was able to get one for me!  These are pictures  of the new quilt.  It's beautiful!!

Harder Choices - Part II

I apologize that I left things kind of vague with the last post, but that was probably the toughest day I've had yet since getting the diagnosis.  I met with a fertility specialist to find out what options I had available so that I could still have a family after all this is over.  I will probably never be able to do it the natural way, but there are several options that are available, but they're just really expensive.  I have made a tenative decision about which way I want to go, but I would like to have 1 more conversation with my surgeon before making the final decision.

Thursday, April 7, 2011

Harder Choices

So I've been able to manage to keep it pretty together and upbeat so far.  And then I had my appointment today.  I am choosing not to go into the specifics of my appointment today, some of you are well aware of where that was.  But the results were not what I wanted to hear, even though I tried to prepare myself for the realities of it beforehand.  This has changed the outlook of somethings dramatically and is now facing me to make much tougher choices then whether or not to cut my breasts off, which was actually a much easier decision to make.

Tuesday, April 5, 2011

Plastic Surgery

I met with the plastic surgeon today.  Seems like a good guy, appears to have a large practice, there were 3 of us there at the same time with an appointment to see him.  Thankfully he didn't tell me anything different then what I was already expecting, based on the reading I've done.  I will start reconstruction immediately after the mastectomies and then after a couple weeks recovery they will begin the fill.  I will have a fill weekly until I reach the size I'm looking for.  Then another surgery to have the implants put in.  Then during an office visit they can do the nipple reconstruction.

I still don't have a definitive date for surgery, but he understands my need to do it at the beginning of my spring break so he's going to try and make that happen for me.  I am going to call my breast surgeon's nurse tomorrow to see if they've figured it out, and I have a couple more questions for them.

I had a great dinner with a dear friend, Linda...we don't get to see each other nearly often enough.  I pity the waitstaff that gets stuck with us, because we spend so much time catching up that it's usually 10-15 into sitting down before we've even GLANCED at the menus!   I'm already curled up in bed, going to read some more and then try and get a good night's sleep, cause imagine me having sleep troubles!!

Saturday, April 2, 2011

Playing the Waiting Game

As happy as I am that things are moving relatively fast, I also have periods of just waiting.  I am anxious to get this thing out of my body, but have yet to hear a definitive date for surgery.  I've proposed to have it in 2 weeks to allow me to have Spring Break in my favor, but nothing has been put on the calendar just yet.  I'm hoping I will know more on Tuesday.  So I apologize for those of you who are waiting for me to tell you about care after surgery, but I don't know what to plan for just yet.

I am spending the weekend with a to do list, both cancer and non cancer related.  I fell behind on my TV shows this week, and of course there's always cleaning and laundry to be done.  I plan on spending as much time with my reading materials as I can to better prepare myself for what's about to happen.

As much as I'm looking forward to having this time to tie up all my lose ends before being laid up after surgery, I just hope this time goes quickly.  I just want to start putting this behind me..